November 27, 2020

Life and Health Updates


 

Hello there friends and family...

Happy Friday....As promised I am here with an update as to why I've been absent from blog land.

I think I posted in the recent past that my husband was going through some testing because he was once again having back pain after eleven surgeries and a spinal cord stimulator which was implanted back in 2019... It was and still is a great blessing but, there is now a problem which we have no idea if it is new or was always there just waiting to show it's ugly head. 

The doctor also wanted him to get some vascular testing done on his legs to be sure that the loss of the use of his leg and leg pain wasn't coming from any kind of blood clots in the legs.

As you can already tell there have been lots of doctor appointments and tests. The result is thanks be to God all the vascular testing turned out well. No issue's there. As for his back, we aren't sure. The doctor who put in his stimulator in is a very very good neurosurgeon. He "thinks' what is happening is, the last part of the metal screws and rods which are fifty percent up the spine, just above that is now starting to give way. He 'thinks' the spinal cord up top may be slightly impinged and that is causing the pain in the back and leg and loss of the use of the right leg. He isn't one hundred percent sure. To make matters more difficult, he will not touch my husbands back. He wants him to go back up to Duke University in NC where they did the last two reconstructions. This presents a few problems for us. Namely, finances, hotel stay, transportation, food. We have five dogs that need to be looked after at home. We have a good, good friend who said she would stay with them but we have no idea how long we will be there.

Then there is the cost of getting up there. It's about a four hour ride one way and neither myself nor my husband can drive that long..So my husband has decided to put this off until after the holidays. 

In the midst of this, my own body decided it was going to derail just a bit more than usual. I had a very severe sinus infection that caused three weeks of almost non stop migraines and nothing helped the pain or the sickness. If you've ever had even just one then you know how sick they make you. Functioning is out of the question. While that was going on, my hormones decided they would begin to act up as well. (I'm 50 and going through peri menopause). The hot flashes began again but this time they were much much stronger and lasted much much longer. I haven't had a full night sleep in a month.

Found a new doctor the other day (not sure how it will work out. We will see). He 'seems', to be interested in helping me but I've had other doctors 'seem' that way too and nothing comes of it. For those of you who do not know, I've been chronically ill since I was twenty one years old and without any kind of good medical care for the last seventeen years because I am a complicated, confusing case and in this day and age doctors are all about money and nothing else. They don't want to get their hands dirty, they don't want to get involved and they don't care about you. You're just a number like a herd of cattle. 

So my dears, this is where I have been. No where. Life is messy.



6 comments:

  1. I will let all of this soak in and reread again. I'm very sorry so much is happening and isn't an easy fix. Robyn, you'll be in my prayers for sure.

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  2. So sorry to hear of all the problems. I totally get what you mean about the doctors, especially the specialists. That is the same way we have felt with them am my dh's muscle problem - whatever it is - they don't want to get their hands dirty or take any time to figure it out. We gave up years ago.

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  3. I'm so sorry to hear of the health problems you folks are having. Medicine just isn't the same any more. I agree about the doctors. I'm getting me a new one too. The one I have doesn't have much use for the elderly. I'll be praying for you, hugs, Edna B.

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  4. I have a couple of doctors who just say "I don't know." and smile as they go out the door.

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Please leave your comments, I love hearing from you! :)
~Robyn~ XO